The association was founded in 1979 as a self-help group by and for people with spina bifida and their families. In 1981, the self-help group established a legal structure as a non-profit organization (vzw).
During the first decades, the membership consisted mainly of young families with a child with spina bifida and hydrocephalus. In the meantime, the life expectancy of a child with spina bifida has become much higher, and we now already have a large number of adults with spina bifida and hydrocephalus among our members.
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