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An important vitamin for the prevention of neural tube defects in general, and Spina Bifida in particular, is folic acid (the synthetic form) and folates (the natural form). It is important to take the necessary dose of folic acid before conception. While you can get this through a regular diet, the amount is insufficient to…

What isSpina Bifida & Hydrocephalus Spina Bifida (open back) is a congenital condition characterized by the failure of one or more vertebrae to close. Shortly after birth, the back is closed, but problems resulting from Spina Bifida persist throughout life. Hydrocephalus (water on the brain) is caused by an imbalance between the production and absorption…

Origin & Diagnosis The neural tube is definitively formed between the 22nd and 26th day after conception. If one or more vertebrae are not closed at this point, it is referred to as spina bifida. The diagnosis of spina bifida can be made at an early stage and, depending on the type of examination, the…

Consequences Bladder, kidney and bowel problems Spina Bifida is a neurological system disorder and therefore affects vital functions of the gastro-urinary system.Various bladder dysfunctions lead to different forms of incontinence, which must also be treated differently. Medication, bladder surgery and catheterization are the most common treatment procedures for people with bladder disorders. Correct treatment of…

Donate Your support for our association is always put to good use. Thanks to your contribution, we can continue to develop our activities and you give us the opportunity to provide our members with useful information. A donation is welcome at our account number BE39 0011 5533 9819. Donations of 40 euros or more are…

Objectives The association’s mission is to improve the quality of life and care for people with spina bifida and to reduce its incidence through primary prevention. The goal of our association is: – To contribute as much as possible to the social integration of every individual with spina bifida and/or hydrocephalus – To contribute as…

To achieve our goals, it is important in many ways to have a large membership base. More members means more mutual exchange of information and experiences, and greater support for collective advocacy. Who can become a member? During the first decades, our membership consisted mainly of young families with a child with spina bifida and…

The association was founded in 1979 as a self-help group by and for people with spina bifida and their families. In 1981, the self-help group established a legal structure as a non-profit organization (vzw). During the first decades, the membership consisted mainly of young families with a child with spina bifida and hydrocephalus. In the…

Who’s who Maria Pauwels Chair Marleen Van der Burght vice chair Hugo Van den Berge secretary Marianne Saelens treasurer Nathalie Verbruggen board member with spina bifida Stijn Calders board member with spina bifida Jurn Anthonis Education Officer