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Last updated on January 22, 2026.

1. Welcome

We are the Association for Spina Bifida and Hydrocephalus, a non-profit organization located at Brusselbaan 237, 9320 Aalst, with company number BE0422.095.795.

In this Privacy Policy, we explain which personal information we collect as the ‘data controller‘ and how we use and share it to improve our services.

This Privacy Policy is an integral part of our Terms and Conditions.

2. Personal Data

The limited personal data we store is collected in the following ways:

  • Website: when you visit our website, certain data is recorded via cookies (including your IP address) to maintain and improve our website. More information about these cookies can be found in our separate Cookie Policy;
  • Business relationship: when you contact us regarding our services as a (potential) customer or partner, we process your full name, contact details (email address, phone number, office and/or home address), and other data necessary for ordering, invoicing, or collaboration (such as your bank details, contact history, or data relating to your previous orders);
  • Marketing: if you give us explicit consent, we process your full name and email address to send direct marketing, newsletters, offers, and promotions regarding our products and services. You can easily unsubscribe at any time.
  • [additional personal data if relevant]

While you are never obliged to disclose personal data, a refusal to provide necessary information may hinder or make it impossible to provide our services.

3. Purposes of Processing

We process personal data as part of our general customer and order management, or to provide our services. This includes customer administration, tracking orders and deliveries, invoicing, answering questions, and for marketing purposes.

Processing takes place based on the following categories of legal grounds:

  • Based on your consent;
  • As necessary for the performance of a contract;
  • As necessary to comply with a legal obligation;
  • To protect your vital interests or those of another person;
  • For the performance of a task carried out in the public interest;
  • As necessary for the pursuit of our legitimate interests to conduct business.

To the extent that the processing of personal data is based on your explicit consent, you always have the right to withdraw the consent given.

4. Sharing with Third Parties

If necessary to achieve the intended purposes, we may share personal data with employees and our professional partners. Our partners will, in turn, take the necessary technical and organizational measures to protect this personal data.

We will never commercialize your personal data to third parties. However, in the context of a possible reorganization, bankruptcy, or transfer of activities, data that is part of our business activities may be transferred to third parties.

In limited cases, we may also be required to share personal data based on a court order or mandatory legislation, such as in the context of anti-fraud efforts or security issues, or to protect our rights.

5. Retention Period

Personal data is processed and stored by us for a reasonable period necessary to achieve the intended purposes, depending on our contractual relationship, to meet legal requirements, or within the framework of standard retention mechanisms that are reasonably limited in time (backups).

6. Your Rights

All individuals whose personal data we store always have the right to:

  • access their personal data;
  • have their personal data corrected or supplemented if it is incorrect or incomplete;
  • have their personal data deleted;
  • have the processing of their personal data restricted;
  • object to the processing of their personal data for a serious and legitimate reason;
  • have their personal data transferred to another company.

To exercise the aforementioned rights, you can contact us by mail or via [email address]. Upon receipt of your request, we will need to be able to verify your identity.

7. Complaints

If you have any comments or questions about our privacy policy, we would love to hear from you.

All individuals whose personal data we store also have the right to file a complaint with the Commission for the Protection of Privacy (Drukpersstraat 35, 1000 Brussels, [email protected]).

8. Security

We apply at least the standard technical and organizational security measures that can reasonably be expected of us to protect your personal data against destruction, loss, alteration, falsification, dissemination, or unauthorized access.

Personal data is only transferred to a partner in a country outside the European Economic Area if that country guarantees an adequate level of protection for your personal data. Before sharing personal data with a partner in the United States of America, we require a separate processing agreement or certification according to the Privacy Shield Framework (www.privacyshield.gov).

We cannot be held liable for any incorrect or unlawful use of personal data by a third party. You also remain responsible for the confidentiality and use of your computer, IP address, login, and identification data.

9. Your Privacy

Your privacy is important to us.

We therefore make every effort to protect it as well as possible and attach great importance to compliance with (i) the Law of December 8, 1992, on the protection of privacy in relation to the processing of personal data (as amended by the Law of December 11, 1998, “Privacy Act”); (ii) the anti-spam provisions from Book XII of the Code of Economic Law regarding the law of the electronic economy; and (iii) European Regulation 2016/679 of April 27, 2016, on the protection of personal data (“General Data Protection Regulation”).